Serious Illness Care

Impact: Enhance care and outcomes for individuals dealing with serious illness

Serious illness care research focuses on understanding and improving the care provided to individuals facing life-threatening conditions. Researchers aim to enhance the quality of life for patients, address their complex needs, and ensure they receive appropriate support and treatment throughout their illness. The goal is to explore various aspects of care delivery, such as symptom management, communication between patients and healthcare providers, decision-making processes, and the overall patient experience.

Kristin Levoy

Enhancing Communication in Oncology: Dr. Kristin Levoy’s PRECURSOR Study Aims to Improve Supportive Care for Patients and Caregivers

Dr. Kristin Levoy addresses the significant challenges in communication that patients, caregivers, and providers face during outpatient oncology visits.

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IU School of Nursing faculty conducting research in serious illness care

4 results found

Adele Crouch
Adele Crouch
PhD, RN, AGCNS-BC
Assistant Professor
adnielse@iu.edu

Susan E. Hickman
Susan E. Hickman
PhD
Director, IU Center for Aging Research, Regenstrief Institute
Professor

Eligible to Direct Dissertations Eligible to Direct Dissertations

hickman@iu.edu

Kristin Levoy
Kristin Levoy
PhD, MSN, RN, OCN, CNE
Assistant Professor
klevoy@iu.edu

Sheri L. Robb
Sheri L. Robb
PhD, MT-BC
Professor

Eligible to Direct Dissertations Eligible to Direct Dissertations

shrobb@iu.edu

Faculty Publications July 2023 - June 2024
  • Indiana Palliative Excellence in Alzheimer's Care Efforts (IN-PEACE): Protocol for a randomized controlled trial in persons with advanced dementia. DOI: 10.1016/j.cct.2023.107217Holtz, L. R., Kroenke, K., Gao, S., Hickman, S. E., Torke, A. M., Johnson, N. M., Pemberton, A., Vrobel, A., Pan, M., & Sachs, G. A.
  • Rapid implementation of Veterans Health Administration telehealth creative arts therapies: survey evaluation of adoption and adaptation. PMID: 37468861 PMCID: PMC10357876 DOI: 10.1186/s12913-023-09796-8. Kristin M Story, Mindy E Flanagan, Sheri L Robb, Dawn M Bravata, Matthew J Bair, David Otto, Teresa M Damush. 
  • Pain and Associated Factors in Nursing Home Residents. PMID: 37003932 PMCID: PMC10440293 (available on 2024-08-01) DOI: 10.1016/j.pmn.2023.03.002. Connie S Cole, Justin Blackburn, Janet S Carpenter, Chen X Chen, Susan E Hickman.
  • Advance Care Planning in the United States: A 2023 review. PMID: 37357107 DOI: 10.1016/j.zefq.2023.05.006. Erik K Fromme, Carole Montgomery, Susan Hickman.
  • Reasons for Discordance Between Life-Sustaining Treatment Preferences and Medical Orders in Nursing Facilities Without POLST. PMID: 36154692 PMCID: PMC10321076 DOI: 10.1177/10499091221127996. Nicholette L Heim Smith, Rebecca L Sudore, Anne L Myers, Bernard J Hammes, Susan E Hickman.
  • JPSM Controversies in Palliative Care: "What is the Most Important, Measurable Goal of Serious Illness Conversations in the Ambulatory Setting?". PMID: 37591321 DOI: 10.1016/j.jpainsymman.2023.08.006. Robert M Arnold, Kristin Levoy, Susan E Hickman, Areej El Jawahri, Vicki Jackson, James A Tulsky.
  • Integrating evidence-based communication principles into routine cancer care. PMID: 37682354 DOI: 10.1007/s00520-023-08020-x. William E Rosa, Kristin Levoy, Katherine Doyon, Meghan McDarby, Betty R Ferrell, Patricia A Parker, Justin J Sanders, Andrew S Epstein, Donald R Sullivan, Abby R Rosenberg.
  • Pain trajectories of nursing home residents. PMID: 36508731 PMCID: PMC10089959 (available on 2024-04-01) DOI: 10.1111/jgs.18182. Connie S Cole, Janet S Carpenter, Justin Blackburn 4, Chen X Chen, Bobby L Jones, Susan E Hickman.
  • Factors influencing clinician decision-making about POLST use with nursing facility residents: A qualitative study. PMID: 38126923 DOI: 10.1111/jgs.18717. Connie S Cole, Hillary D Lum, Susan E Hickman.
  • Daily Engagement in Meaningful Activity for Home Care Patients with Subjective Cognitive Decline and Caregivers. doi:10.1093/geroni/igad104.3742 Lu, Yvonne; Ellis, Jennifer; Perkins, Susan; Hickman, Susan; Chang, Pei-Shiun; Hasse, Joan; Otis, Laurie; Winton, Rebecca
  • Caregiver Engagement in Serious Illness Communication in a Long-Term Acute Care Hospital Setting. PMID: 38100624 DOI: 10.1177/10499091231219799. Kristin Levoy, Rebecca L Ashare, Niharika Ganta, Nina O'Connor, Salimah H Meghani.
  • Opportunity and Responsibility in Music Therapy Research. PMID: 37955941 DOI: 10.1093/jmt/thad025.Sheri L Robb.
  • Realizing the Promise of Advance Care Planning Will Require Health System Accountability to Quality Standards. https://doi.org/10.1016/j.jcjq.2023.11.006 Hickman, S. E., & Fromme, E. K.
  • An Integrative Review of the State of POLST Science: What Do We Know and Where Do We Go?. PMID: 38395413 DOI: 10.1016/j.jamda.2024.01.009. Elizabeth E Umberfield, Matthew C Fields, Rachel Lenko, Teryn P Morgan, Elissa Schuler Adair, Erik K Fromme, Hillary D Lum, Alvin H Moss, Neil S Wenger, Rebecca L Sudore , Susan E Hickman. 
  • Internal consistency reliability of the Revised Illness Perceptions Questionnaire: A systematic review and reliability generalization meta-analysis. PMID: 38314719 DOI: 10.1177/13591053231221351. Eleanor Rivera, Kristin Levoy, Chang Park, Azucena Villalobos, Paige Martin 3, Min Jung Kim, Karen B Hirschman.
  • Shifting perspectives and transformative change: Parent perspectives of an active music engagement intervention for themselves and their child with cancer. PMID: 38337169 DOI: 10.1002/pbc.30913.Kristin Stegenga, Amanda K Henley, Elizabeth Harman, Sheri L Robb.
  • What Clinicians and Researchers Should Know About the Evolving Field of Advance Care Planning: a Narrative Review. https://doi.org/10.1007/s11606-023-08579-5 McMahan, R. D., Hickman, S. E., & Sudore, R. L.
  • Correlates of frailty in older female cancer survivors. https://doi.org/10.1016/j.jgo.2023.101682 Rio, C.J., Saligan, L.N., Li, X., Crouch, A., VonAh, Diane
  • Factors influencing clinician decision-making about POLST use with nursing facility residents: A qualitative study. https://doi.org/10.1111/jgs.18717 Cole, C. S., Lum, H. D., & Hickman, S. E.
  • Conditions Associated with the Pragmatic Implementation of an Advance Care Planning Intervention in Nursing Homes (RP125). https://doi.org/10.1016/j.jpainsymman.2024.02.437 Hickman, Susan; Miech, Edward; Stump, Tim; Mack, Laramie; Tu, Wanzhu; Unroe, Kathleen
  • Kristin Levoy, Rebecca Ahsare, Niharika Ganta, Nina O-Connor, Meghani Salimah
  • Shifting perspectives and transformative change: Parent perspectives of an active music engagement intervention for themselves and their child with cancer. https://doi.org/10.1002/pbc.30913 K. Stegenga, A.K. Henley, E. Harman, S.L. Robb
  • What Clinicians and Researchers Should Know About the Evolving Field of Advance Care Planning: a Narrative Review. PMID: 38169025 DOI: 10.1007/s11606-023-08579-5. Ryan D McMahan, Susan E Hickman, Rebecca L Sudore.
  • JPSM Controversies in Palliative Care: "What is the Most Important, Measurable Goal of Serious Illness Conversations in the Ambulatory Setting?". PMID: 37591321 DOI: 10.1016/j.jpainsymman.2023.08.006. Robert M Arnold, Kristin Levoy, Susan E Hickman, Areej El Jawahri, Vicki Jackson, James A Tulsky.
  • Spirituality in Adolescents and Young Adults With Cancer: An Evolutionary Concept Analysis. PMID: 37853729 DOI: 10.1177/27527530231190375. Oladele O Oyedele, Celeste Phillips, Sheri L Robb.